shecries

She Cries

An essay on Fibromyalgia

Fibromyalgia, ever heard of it? Neither had I, until two years ago. Fibro (as this
condition is commonly referred to by those who live daily with this medical issue) is
best explained in the following terms:

What is Fibromyalgia?

Fibromyalgia (FM) is an increasingly recognized chronic pain illness, which is
characterized by widespread musculoskeletal aches, pain and stiffness, soft tissue
tenderness, general fatigue and sleep disturbances. The most common sites of pain
include the neck, back, shoulders, pelvic girdle and hands, but any body part can be
involved. Fibromyalgia patients experience a range of symptoms of varying intensities
that wax and wane over time. [1]

Pain

The pain of FM is profound, widespread and chronic. It knows no boundaries,
migrating to all parts of the body and varying in intensity. FM pain has been described
as deep muscular aching, throbbing, twitching, stabbing and shooting pain that defines
the very existence of the Fibromyalgia patient. Neurological complaints such as
numbness, tingling and burning are often present and add to the discomfort of the
patient. The severity of the pain and stiffness is often worse in the morning.
Aggravating factors which affect pain includes cold/humid weather, non-restorative
sleep, physical and mental fatigue, excessive physical activity, physical inactivity,
anxiety and stress. [2]

I suppose the best place to begin is to state my reasons for attempting a project relating
to a condition that few know about and even fewer are educated on. You see my wife,
Carolyn, suffers from this devastating condition. She has had FM now for well over
fifteen years and as her condition worsens I am forced to watch and when I can,
however small, to help her as the needs arise.

To “help her…” An interesting choice of words as I watch daily her struggles as she
fights this demon which wants to only take what it can from her and destroy every
aspect of her life; A demon, who’s attacks are relentless as it invades not only Carolyn’
s life but all those who love her as well. I think the time is well past due for her story to
be told….

“Burning hot grease….”

This is how Carolyn relates the constant, non-stop pain that assaults her legs. She
cannot wear clothes-a ritual that you and I take for granted-because even the touch of
cotton, or an even softer material such as sheepskin, drives her out of her mind. The
sheets on the bed leaving her legs purple at the irritation of having them on her. At times
if I go to touch her in an affectionate manner I am gently asked, “not there, Baby,
please.” and am forced to leave her shoulders or arms or back areas alone. And then
she cries because of her longing for my touch. The frustration overwhelms her and the
tears flow. The demon, Fibro, wins again... Or when we are in the middle of Wal-Mart
or our favorite hang-out, Staples, the pain, frustration and tears cause us to abandon
our trek for the house so Carolyn can take off the favorite jump-suit she wears for no
clothes at all. The demon laughs at yet another victory.

The friends she once had gone save a select few; even members of our own family
abandon her, this soldier in a fight she knows she will ultimately lose. The common
choice of words being, “It’s all in her head,” or “there go the games again…” Plans are
broken because the pain is just too great on this day to go out, the Unforgiving not
understanding, move on to others whom are “more fun to be with.”

“I can’t remember…”

Common words in my house because of the Fibro-Fog that plague these soldiers of
FM. “I Can’t Remember” working closely with the demon Pain to leave it’s victim
staring off into space trying to remember what they wanted to say, trying to grasp at
that last thought that has eluded them…again. I, as a supporter, having to constantly go
behind my wife to make sure the oven has been turned off after the cooking is finished,
or that the cigarettes are out in all of our ashtrays as we leave for another one of many
doctor appointments.

The doctors shake their heads in wonder at what to do next. The tears flow in their
offices as reality once again hits home. Pain management is constantly being changed to
try and combat the demon; unsuccessful again…we lose another battle in the war. With
our shoulders sagging we stop by the front desk on our way out to schedule a follow-
up appointment, knowing in the backs of our minds that the results will be the same
upon our return in a month. Medications are raised, lending to the fog…more tears
come. Hope is chipped away at again….

“I didn’t sleep again last night….”

I get up in the morning to find my Princess red-eyed and distant. “I couldn’t sleep at all
last night so I thought I would try to read more on Fibro…. I cannot remember the
article I just read though…” More tears. Maybe she can steal an hour or two away
from the demon through the day, maybe not. So Fatigue joins its place with the others
and the battle rages on.

To add to my wife’s condition she has other medical issues from her past that would
stagger the fiercest of men: A total of nine surgeries. One on her back to attempt to
remove two spurs, attached to her spine as well as to relieve a ruptured disk. The
surgery leaving her worse off for the experience; more pain on a daily basis, more
tears. Three surgeries on her left wrist to combat the Carpal Tunnel which has made it’
s home there; and one surgery on her right wrist for the same reason. And if that wasn’
t enough three surgeries on her left knee due to a loss of cartilage. Did I mention the
Mollaret’s Meningitis that she suffered from while in the Army? Today her main mode
of transportation is her wheelchair. Although she still retains the ability to walk, this gift
may be taken from her altogether in the very near future.

To know Carolyn Waller, however, you would not know she suffers these multiple
medical issues at first glance. Always quick to smile, always quick to listen to another’s
problems, always quick to tell that joke, placed just right, to put another at ease. I
continue to be amazed at her strength and her courage; it remains an honor to be a part
of my wife’s life, and a privilege to be allowed in her inner circle to help as I can.

Carolyn has been my friend when none other could be found; my supporter as I pursue
my dreams as a writer; my guide as I overcome my own demons. This veteran (both
from the service and from the battles she wages currently) never fails to leave another
better off for having come across her path; I know this as personal fact. I am
constantly amazed and humbled by the gift of her love and the generosity she free gives
to others. Maybe this is her best weapon in her fight with FM.

Fibromyalgia,have you heard of it? It breaks my heart when she cries…

~~~~~

Author's Note:

Thank you for your time in reading this personal project, I hope meeting my wife,
Carolyn, in this way leaves you better off for your experience. You may reach Carolyn
at Carolyn_n_ny@yahoo.com for any responses, questions, or the like if you wish. You
may also contact me at rjwaller@rjswritingloft.com Also, please consider visiting
National Fibromyalgia Association! (NFA.Com) for a deeper look into the life of people
who suffer from Fibromyalgia. Also, for strong community support and further
information visit Fibrohugs.com

~~~~~

Author's Footnotes:

[1] Excerpt taken from the following source: National Fibromyalgia Association! (NFA).

[2] Excerpt taken from the following source: National Fibromyalgia Association! (NFA).

RjsWritingLoft.Com

In Honor of My Wife & Best Friend: For You, Princess

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